Another successful day here in Special Care, and I spend my time going back and forth between Drake's crib and Kennedy's crib. This is very similar to how I spent my days in the NICU, but here I am allowed to hold them whenever I would like. It's really nice when my mom is here during the day, because she can hold one baby while I hold the other.
Drake had his visit with the ENT (ear, nose & throat) doctor today. He was not a happy camper during the exam, but the doctor was able to determine the diagnosis. Drake has partial paralysis of his right vocal cord. This is a complication from being intubated for such a long time. He said that usually they see complete paralysis of one or both sides, and Drake only has partial on one side. This may or may not cause problems when we introduce feeds. Our next steps will be for the occupational therapist to conduct a swallow study test to make sure nothing goes down his wind pipe, and then have an MRI of his head to rule out a problem with the nerve that controls the cords. These should be completed within the week, and his neonatologist does not expect to see anything abnormal with the MRI. If Drake does not have any problems with his swallow test, then the ENT will just want to follow up with him every few months. Both doctors feel this partial paralysis is something that he could resolve on his own.
Kennedy is consistently doing well with her feeds. She doesn't have the stamina or endurance yet for full feeds, but she will in time. I do feel like the Enfamil AR is helping with her reflux, but her little body is still adjusting to the change in her diet which has caused a few tummy aches. However, we have found that a warm blanket and being held by mommy or Gran seem to help.
9) Drake with Gran