Reflecting back on our personalities, (our parents can vouch for this) Brian and I always do things the hard way...why would our son be any different. A very good friend of mine sent a message that got us thinking about this. She and her fiancé were discussing our situation. When she was upset and angered by everything we are faced with, her fiancé said to her, "Don't you think Drake likes a challenge? Don't you think God knows what drives Drake? Drake and Kennedy fought to be conceived, born, survive and thrive and I don't see his personality changing anytime soon. God has big plans for that boy! BIG plans!"
After reading that email from my dear friend, it hit me...this is so right. This is the way we do things. We find the most difficult path and that is the route we take. My parents and Brian's parents are probably shaking their heads while reading this...we never do things the easy way; we never give up when the going gets tough and we always accomplish the goal. In this, I feel comfort in knowing that Drake and Kennedy will accomplish the goals in front of them while traveling down this tough path.
Today I met with the developmental doctor who had seen Drake previously in the NICU. She, just like the doctors and nurses, was floored by his recent MRI. She had reviewed his chart and has high hopes for him. We are scheduled for an appointment to begin going to her clinic in December; we will continue the intervention treatments we are currently doing here in the hospital. She was pleased with his progress thus far and when I showed her a picture his MRI, she was in disbelief of the differences she saw in Drake verses the MRI.
Kennedy has been off of her nasal cannula for two days now and she is doing great! It is wonderful to see her pretty face without the clear tubes blocking it. She is still working on her bottle feeding because she battles with reflux at every feed.
3) Kennedy's bath