We were fortunate to spend today with family here in our home. Papa, Aunt Gigi, Uncle Matt & Uncle Chuck have all been in town to visit. Brian and Papa have been working on much needed chores around our home which have been neglected while we've been in the hospital. Thank goodness Aunt Gigi has been here to help me take care of Drake & Kennedy. Both babies enjoy spending time with her as much as she adores them.
Drake's nurse is with us during the days Monday - Friday and she will be greatly missed over the weekend. I am so very busy dealing with insurance companies and additional disability offices; I am able to spend hours on the phone needed to follow up and keep my advocation efforts moving forward.
Drake seems to be adjusting well to his new G-button for his feeding tube, and yes it is much easier on us as well to connect his feeding tube. We can tell he is feeling less pain as he is less fussy when we are hooking feeds up. We have been working with him daily on his supplemental oxygen needs. Unfortunately, he is still requiring his oxygen support because his saturation levels are just not high enough yet to remove it completely.
1) Kennedy & Papa
3) D&K helping cook dinner