Stressful Days

Since my last post, Drake has not been himself. Anytime Drake is not feeling or acting like himself, I am in a constant state of stress...not panicked, just stressed. He began requiring oxygen support on Wednesday and the support increased each day. Our fears of the possibility that the support needed would reach levels greater than we can provide at home had definitely started. Preliminary calls were made to let family know to please be "on-call" in case we needed them. Brian was stressing in Florida because he is out of town on his annual business trip. It was exactly 2 years ago that Brian had to fly home early from Florida because Drake was in the PICU and we were preparing for his trach surgery. Wow! I can't believe it's been two years.

On Super Bowl Sunday, I contacted our pulmonologist and he has us make some vent changes to provide more support and begin Drake on a round of inhaled antibiotics. I'm happy to say that he is improving! Yesterday we were able to wean him down to 1L of oxygen support, and today he has been off of oxygen completely! We will slowly work up to his time off of the vent again, and eventually we will get him back where he was before RSV hit. 

Kennedy and I went for pedicures on Friday with one of her sweet little friends. When we got home she said, "I love my toenails painted!" She was excited to show her daddy as soon as he walked in from work. It's good for Kennedy to have fun outings with her friends, and I'm sure it is good for me, too. After gymnastics last week, we all (everyone in her class) went to lunch at Chick-fil-a! 

Hayes turned 4 months old and did excellent at the pediatrician! He was 24.5" (30th percentile for height) and 13# 3.5oz (7th percentile for weight). We were given a referral to Cranial Technology in Dallas for a plagiocephaly (flat head) evaluation. He may need a helmet like Drake and Kennedy, but his flatness really isn't bad so we'll see what they say...and what insurance says. He was such a happy boy until the shots, and he seemed like his feelings were hurt the most. Thankfully he didn't cry for very long and he was back to smiling again once we were at the car!

Today I had another stressful day...a scary day! When I went on a run in our neighborhood with Riot, a car with two males stopped in the middle of the road. I crossed the road to be farther away from them and they began reversing staying right with me. I pulled out my cell phone and one of the guys got out of the car and started coming towards me. I took off running with Riot in the opposite direction calling our neighborhood security along the way. Thankfully another car finally drove by, too. We finished our run, even though I was completely terrified the entire time. In my mind I was constantly choosing neighboring houses to run to for sanctuary in case the car showed back up. 

As stressful as this past week has been, and especially today, I will not give in to fear. I will continue to be hyper vigilant of my surroundings and take extra precautions. 

Goodnight kisses!

She loves her brothers!

After his 4 month check-up

Dancing with Hayes during Half Time of the Super Bowl

Everyone working on the mat together

Practicing her letters

He's too much!