Tuesday, February 26, 2013


We are currently staying at Gran and Poppy's for these upcoming doctor visits. This way little Miss Kennedy has a babysitter while Drake and I are gone to the doctor visits. Tomorrow is the neurologist and Thursday will be the cranial evaluation. By the end of this week, we will all be ready to reunite at home with Daddy.

Today I was able to get out for a lunch with some very special friends from Presby. They came by my parents house to visit with the babies and marveled at their development post discharge.

Both Drake and Kennedy's congestion has improved greatly! We are still doing breathing treatments on Drake, but I am just glad to see him improving. Boy does Kennedy act different away from home! She is so afraid she is going to miss something, that she is absolutely fighting every nap possible. This is going to make for quite a challenge for Gran the next two days as we are gone with Drake to appointments.

Oh, Mr Drake... We have been working with him on using his hands and grasping toys. He seems to have taken that and run with it...last night he disconnected his feeding tube. Luckily I woke up during the night and was able to reconnect it before he lost too many calories, but not before it made quite a mess on the floor.

Drake's dietitian through ECI came out this weekend. In the past three weeks since her last visit, he has grown a full inch and almost one pound! Way to go Drake! I hope and pray to have good news to report on Friday.


  1. Good luck in the next couple of days! We'll be rooting for you and Drake!

  2. I don't know that I can wait till Friday!!!