Tuesday, August 30, 2016

Out of the Mouths of Babes...

This morning when Kennedy got dressed she wanted to know what her shirt said. 'Follow Your Dreams' After telling her, she repeated it back to me with her own little twist. "Follow your dreams and help people!" Seems like a pretty amazing motto for life! We know as she continues to grow and learn she will experience a combination of joys, sorrows, triumphs, and defeats that will mold her into who we pray is an amazing young lady. May her 4 year old motto continue into adulthood and inspire others along the way. 

To be honest, I'm a little overwhelmed with making decisions in regards to Drake's healthcare. The MDCP (Medically Dependent Children's Program) is going away as of this coming November 1st. We are given choices of other Health Care options which are determined based on the county in which you live. The only problem...most of Drake's doctors (all of his specialists) live in a different county. Right now none of them have been able to tell me who they will be in network with after November 1st. Of course, our fear is losing all of his specialist who know him and have been providing his care for the past few years. We are praying for clarity as we make some pretty big decisions in regards to Drake's medical care coverage. 

We have some other big changes on the horizon for Drake as well. His new day nurse will be joining us this Friday. Adjusting to a new nurse takes time for Drake, the nurse, and for the rest of our family, too. She seems eager to learn Drake's routine and be a big help in continuing with his progress. Hopefully in a few months, she will be a Drake expert like the rest of us! :)

Our sweet Hayes is growing up way too fast! He is constantly on the go and into everything! He is 100% interested in anything Drake and Kennedy are using. Sometimes he is even a little too helpful...he pulls himself up and pushes Drake's communication buttons for him. It's hard to believe in a little over a month our little guy will be turning 1! 

No matter how caught up we get in this busy life, it's great to see the values we try to instill in our children are showing up in their outlook on life...follow your dreams & help people. Our plan is to continue to teach as much as we can before they become teenagers and think they know more than we do :) 

Play time with just mommy & daddy!

It is unacceptable to be left inside while daddy & sister are outside!

Sweet Boy!!

Kennedy with cousin Jacob! He's the Top of the growth chart & she is the very bottom!

Family Fun at Discovery Science Place!


Always wants to help his brother!

Cousin fun!

Why does my boy look so grown up??

Yum!

2 comments:

  1. your children are amazing have been following since twins were born you guys are super parents and so lucky to have such sweet and beautiful babies good luck on drakes healthcare must be very scary hope it works out well

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  2. Praying for you & the family. I hope the prayers will be answered. God has been kind in the last year, hopefully your care providers will be in network. Hugs to you.

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