This experience has been a complete 180 from last time! I wish a smooth delivery and after process for all previous preemie parents. So far, he is such a good baby! He is eating well and sleeping well. We think he is resting up and saving his shenanigans for when we get home.
Seeing Kennedy with him for the 1st time was absolutely precious! She loves him! We just hope she still fills this way once she realizes that he is a full time family member and resident at our home.
Drake's therapist brought him a Big Mack Switch, which he is already beginning to master! It is so much larger and easier for him to use than his other buttons. I love watching him think through the process and make his body do what he wants. One of our friends also made him a dry-fit sleep sack. Tonight will be his first night to use it, and I am anxious to hear how things go. He, like many special needs children, do not grow out of the startling reflex that all newborns have. Unfortunately, sleep sacks made to help calm babies to sleep are not made for 3 year olds...especially, hot natured 3 year olds. Our hope is that the dry-fit material will keep him from getting too hot and the sleep sack design will help calm his startle reflex.
Now with our family of 5, we plan to head home tomorrow and begin carrying on this next chapter in our lives!
Hayes Sawyer Gilstrap
October 5, 2015