When anyone asks me how we do everything, I tell them that we take things one day at a time. Although I lost track of my days and completely forgot to post a Friday blog. After we got the babies to sleep last night, we ate a late dinner and watched the movie "42". I honestly did not remember until I woke up this morning and realized it is Saturday.
We are on Day 4 of Drake's seizure medications. We haven't seen any noticeable changes yet as far as side effects or seizure reduction. Tomorrow we will increase his dosage to twice each day, and at the end of the week he will be up to his full dose. On Monday morning Drake has a vision appointment at Children's in Dallas to check for Cortical Visual Impairment (CVI). Brian and I have already discussed that if the results show that Drake does have CVI, it will not effect our spirit. It will merely give us one more thing to work on with him. We are already doing visual stimulation daily, and we can add a few more therapies into this area of his program. Plus, I am in contact with several parents within Snowdrop who have children with seizures and children with CVI and I know they will be a great resource. I have a high school friend who has been following Drake and Kennedy's journey who contacted me, and she is a vision teacher. She has already offered to help with resources and input from her experience. We are so blessed!
Kennedy is doing great and her hair has finally reached a length long enough for her first tiny ponytail! Now I need to get some tiny hair ties for baby hair because mine wasn't small enough to keep it in for a long period of time. She is a busy baby and into everything! She loves attention, which I'm sure is noticeable in pictures, but she also entertains herself really well, too. Yesterday while Drake's therapists were here, she played in her play-yard and seemed to be having a great time. On Thursday I went by Brookshire's to pick up some promotional items and a flash drive with pictures from her photo-shoot. She is going to love seeing these when she is older.