Good Things Come: Blur

The past few weeks have literally been a complete blur for me. Half the time Brian and I are not even correct about what day of the week it is from day to day. I even wrote a blog two weeks ago and it is somewhere on my ipad...only problem is that my ipad is currently misplaced. Find my ipad only tells us that it is turned off, which really means that the battery died while it's been MIA. I have not doubt we will locate it sometime in the near future, and probably in a very random location. Lately finding our deodorant has turned into a game itself "Which Drawer?" brought to us by our sweet son, Hayes. I think it might be wise to invest in a few more baby locks.

We have all been working 7 days/week getting everything ready to go with the brewery opening. We have put so much of our time, energy and hard-work into getting our business up and running. We are thrilled to be officially opening tomorrow 1/4/2017 in Downtown Tyler! Our tap room will be open on W-TH-F 4-10 and Sat 12-10ish. The time, energy and hard-work are not going to stop now that we are open, but at least we can start making some income.

Overall the kids have all been doing really good. Drake has had a couple of scares over the past few weeks, but we have managed them and he is on the road to being back to his baseline soon! One of the scares/issues recently was a malfunction with his trach. His trach has a cuff (a balloon) we inflate at night. When it is inflated, it prevents him from being able to breathe in and out of his nose or mouth and rely solely on the trach and vent. This also prevents him from having any drainage or secretions go down into his lungs, and it also helps with his apnea during deep sleep. The malfunction, we discovered, was a leak in the cuff. We have had a leak in a cuff previously, but the leak was on the outside. The problem this time was a leak on the inside! This meant that the saline in his cuff leaked directly into his lungs! Needless to say this caused issues. He had to remain on the vent, required extra CPT (shake vest) to help him cough up the saline, oxygen support and extra breathing treatments. Thankfully, within a few days he was back to himself, and we immediately changed trachs and threw the bad one away!

I had surgery a couple a weeks ago, and my wonderful sister and brother-in-law took Kennedy and Hayes to help us out for a few days and allow me to recover. Not only did they do a great job taking care of our little tykes, but they also took them to Holiday in the Park at Six Flags! The pictures were adorable! I love that our little ones enjoyed such a fun experience with their Aunt, Uncle and cousins!

Even though Brian and Uncle Matt didn't get to take any time off from working to enjoy the holidays, we still managed to squeeze in a little family time. Kennedy, Hayes and I spent our Christmas Eve in McKinney with my family and Brian's family came in town to stay with us beginning on the night of Christmas Eve. Our little house doesn't provide much room for guests, but Kennedy didn't mind giving up her room when it meant a slumber party in mommy & daddy's room!

This past weekend was yet another scare with our sweet Drake. This seems to happen about twice each year. He got stuck in a bad seizure and our emergency medications here at the house were not enough to pull him out of it. Therefore, we found ourselves headed to the ER via ambulance and getting IV meds in route to help stop the seizures. We were finally able to get the seizures under control; then his temp, xrays, cultures and labs were taken. He was running a small fever, Tylenol took care of that. Thankfully the ER doctor at TMF was very open to listening to me and consulting with his pulmonologist and neurologist in Dallas. Pulmonology ordered starting of Tobi (an inhaled antibiotic that we keep on hand), a round of steroids, increased breathing treatments, and CPT (shake vest). We were released! We still spent our entire day at the ER, but the silver lining is that we got to come home...Our Happy Place!