Tuesday, December 9, 2014


Today we went to vent clinic as a follow up after Drake's discharge from the hospital. Drake is doing good. Since last week, we were able to wean him off his oxygen and he is back on room air. Today's chest x-ray was a little hazy, but that's okay! We're changing his breathing treatments from every 3 hours to every 4 hours, and the plan is to wean his vent settings next week. When he tolerates these new changes we will call vent clinic and hopefully start him back on his trach collar trials (time off of the vent). 

It sure is nice getting back into our regular routine of exercises and therapies. Even with this latest hospital setback, Drake's growing strength is evident! I'm looking forward to seeing how he does with his physical therapy and speech therapy tomorrow! Speaking of tomorrow...Kennedy has a weight check appointment with our pediatrician. We know she's small, but hopefully she has grown enough to make the chart this time! 

We had a crazy fun weekend with Aunt Gigi, Uncle Chuck, and Uncle Matt! Anytime we're all together, laughter is sure to fill the air! Presents! Presents! Presents! Aunt GiGi definitely spoils Drake and Kennedy rotten! We love hearing and seeing Kennedy's excitement when she receives a gift! Looks like Christmas is going to be pretty fun this year! 

Sitting with bubba in his chair!

Good work, Drake!

Notice he is sitting completely unassisted!!!!! It was for a short time, but it's a great start! 

Pretty new clothes from Aunt Gigi!

Too cute!

She fills our life with pure JOY!!!

Coloring is one of her favorite things!

A Frozen outfit, Frozen slippers & Olaf!!! Who doesn't need a kid size Olaf?!! 

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