Life Interrupted

 We are a month into Drake's hospitalization and as eager as we are to get him back home, we are trying our best to be patient with the process. This afternoon we met with the Care Team to discuss his progress, goals and his tentative discharge date. As of right now, we will hopefully be taking our baby boy home on April 1st...not the date we were hoping to hear. Brian and I are scheduled to be cleared with all of our trach trainings and 24hr total care rooming-in days by March 23rd. We were actually called "over achieving" parents during our meeting...we are going to assume that was a compliment. His extended stay is due to being weaned off of the methadone. His 1st scheduled wean was to be completed on April 8th, so the 1st doesn't seem as bad now. Drake will let us know if the faster wean is going to work, so we will be praying he handles this well.

Gran is going to bring Kennedy down to see Drake later this week, and we think this is going to be good for both of them. Drake's extended hospitalization has been difficult on her, too. We are lucky to have Gran & Poppy taking care of her, but not having her mommy, daddy & bubba with her daily has been taking a toll. She has been regressing; this is much like you would see with a young child when a new baby is born into the family. It is most noticeable when trying to get our once chatterbox to use her words. We know once we are all back home again, she will be back to talking our ears off in no time. 

The good news...Drake has maintained his saturations on 1L of oxygen support, and his CO2 levels have been in the "normal" range for several days now. We honestly never thought his CO2 levels would reach "normal" range. Over the next few weeks, they will continue to try and wean his oxygen support and vent settings. Even though it is going to take a little longer than we had hoped, our life will pick back up this spring.

LoVe seeing his sweet smile again!!!

Enjoying having mommy & daddy for the evening!

Thanks for the encouragement, daddy!

Working so hard!!!

Zonked out after his bath :)

Going...

Going...

Gone!  Out like a light! 

Love holding this girl!

Brian holding our new niece, Elizabeth