Gran is going to bring Kennedy down to see Drake later this week, and we think this is going to be good for both of them. Drake's extended hospitalization has been difficult on her, too. We are lucky to have Gran & Poppy taking care of her, but not having her mommy, daddy & bubba with her daily has been taking a toll. She has been regressing; this is much like you would see with a young child when a new baby is born into the family. It is most noticeable when trying to get our once chatterbox to use her words. We know once we are all back home again, she will be back to talking our ears off in no time.
The good news...Drake has maintained his saturations on 1L of oxygen support, and his CO2 levels have been in the "normal" range for several days now. We honestly never thought his CO2 levels would reach "normal" range. Over the next few weeks, they will continue to try and wean his oxygen support and vent settings. Even though it is going to take a little longer than we had hoped, our life will pick back up this spring.