Despite our best efforts, Drake was unable to maintain his oxygen saturation levels at home on O2. He was admitted to the Pediatric ICU at Medical City in Dallas on Monday evening.
I don't think anyone could nor should ever get used to the ever constant flow of activity with their child being in the ICU! Nurses, doctors, respiratory therapists, and the list continues. Unfortunately, when you experience this as much as we have, there is a certain numbness to the environment. You have reached that point when you find yourself doing things that are typically reserved for skilled nurses and when you don't ask the nurse one hundred questions every time they walk through the door.
I am happy to say that Brian made it out of Florida on the first flight out to help give myself and Drake's nurse an extra hand...to get some much needed sleep and nutrition!
Drake has been on a constant flow of Heliox at a very high setting; a blend of helium, oxygen, and a heated vapor. Without going into the details we now know, this gas mixture permeates the lungs easier. They have been coming in every three hours to change the tanks and these tanks are very big and heavy. This has been doing great things to keep his saturation levels where they should be. We are so glad this is working well; the doctor said that if they have to intubate someone that was on a ventilator as long as he was, it is very difficult to ween them off again. We pray that he continues to show improvements on the Heliox and intubation is not necessary.